Welcome to Canadian PKU & Allied Disorders
We help your children
Healthy children
1 in 12,000 newborns
Adults with PKU
We Are Not PKU


CanPKU believes that creating awareness around PKU and other rare diseases helps patients…Because Knowledge Leads to Better Health.


When people are aware of a condition, they are more likely to be understanding and supportive.  This might be as simple as ensuring that there are appropriate food choices at the next party your child attends, or it might mean that a politician will fight on your behalf for coverage of treatments.


How can you create awareness? You can tell your neighbours and friends about PKU, provide your child’s teacher with the ABC’s of PKU or host a community event.  Whatever you decide to do, big or small, we are sure it will have a positive impact on your PKU life!

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