Welcome to Canadian PKU & Allied Disorders
We help your children
Healthy children
1 in 12,000 newborns
Adults with PKU
We Are Not PKU

Need to talk?

Need to talk?  We’re here to help.  Through our network of volunteers, we are sure that we can connect you with someone that understands exactly what you are going through.  Please feel free to contact any of the volunteers below at any time – they will be happy to help you however they can.  If none of the people below seem to fit with your needs, or you would like to offer yourself as a contact for a different category, please contact Nicole Pallone, VP at [email protected] or 250-910-6426.



It is a tough time, but talking to someone who understands what you are going through always helps!  Please feel free to contact either of these parents for support.





Dealing with PKU once your child hits the school system can be tough but we’re hear to help.  Feel free to contact one of these parents who have children in Elementary School!








The teenage years can be a challenging time in parenting for anyone, not just those with PKU!  However, the necessary diet compliance increases the complexity – talk to other parents who have been there for ideas and support.


  • Sandra Hughes is the mother of a teenage girl with PKU, and is familiar with some of the struggles that can come with the teen years. Her daughter is socially and academically successful but this has not been without challenges.  Sandra has been a dedicated CanPKU volunteer for many years and can be reached at




Maybe you have always been on diet with great levels.  Maybe you want to return to diet but don’t know where to start.  Or maybe you just want to talk to someone else that knows what it is like to live with PKU!





Having PKU and being pregnant can be a scary thought, but there are many people who have dealt with maternal PKU very successfully! Talking to someone who has had the same fears but overcome them can be very helpful!




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