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Adults with PKU
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Provincial Advocacy Packages

Kuvan Campaign

 

Kuvan is the first pharmaceutical treatment for PKU proven to lower blood-phe levels. It works for approximately 40% of patients, to varying degrees, and the only way to determine whether it is effective is for an individual patient to try it. The patients who respond significantly to Kuvan deserve to have access to this innovative treatment, and public funding of Kuvan will pave the way for future PKU treatments in Canada.

 

To help in this effort, please go to your province or territory section below and download the materials posted. They will provide you with all of the information you need to start engaging.  Please read each document carefully as circumstances in your province may have changed since these documents were created!  If you have any questions about the current state of affairs, please contact us.

 

As well, please download the PKU Fact Sheet just to complete your materials.

 

Thank you taking part in this important campaign with CanPKU.

 

ALBERTA – KUVAN ADVOCACY RESOURCES

 

CANPKU TAKES ACTION IN ALBERTA (PDF)

DRAFT CONSTITUENT LETTER TO MLA – AB (DOC)

DRAFT MLA LETTER TO MINISTER – AB (DOC)

DRAFT RESIDENT LETTER TO MINISTER OF HEALTH – AB (DOC)

OUTLINE FOR MLA MEETINGS – AB (PDF)

MLA Meetings – Report Back Form – AB (DOC)

 

BRITISH COLUMBIA – KUVAN ADVOCACY RESOURCES

WIN: as of January 1, 2014, BC now funds the low protein foods needed by patients with PKU and other diet-managed Inborn Errors of Metabolism.  ADVOCACY WORKS!

CANPKU – BC – To Harm or Protect? Poster (PDF)

CANPKU TAKES ACTION IN BC (PDF)

DRAFT CONSTITUENT LETTER TO MLA – BC (DOC)

DRAFT MLA LETTER TO MINISTER – BC (DOC)

DRAFT RESIDENT LETTER TO MINISTER OF HEALTH – BC (DOC)

OUTLINE FOR MLA MEETINGS – BC (PDF)

MLA Meetings – Report Back Form – BC (DOC)

 

 

MANITOBA – KUVAN ADVOCACY RESOURCES

 

WIN: as of 2015, Manitoba now funds the low protein foods needed by adult patients with PKU and other diet-managed Inborn Errors of Metabolism.  ADVOCACY WORKS!

 

CANPKU TAKES ACTION IN MANITOBA (PDF)

DRAFT CONSTITUENT LETTER TO MLA – MB (DOC)

DRAFT MLA LETTER TO MINISTER – MB (DOC)

DRAFT RESIDENT LETTER TO MINISTER OF HEALTH – MB (DOC)

OUTLINE FOR MLA MEETINGS – MB (PDF)

MLA Meetings – Report Back Form – MB (DOC)

 

ONTARIO – KUVAN ADVOCACY RESOURCES

 

CANPKU TAKES ACTION IN ONTARIO (PDF)

DRAFT CONSTITUENT LETTER TO MLA – ON (DOC)

DRAFT MLA LETTER TO MINISTER – ON (DOC)

DRAFT RESIDENT LETTER TO MINISTER OF HEALTH – ON (DOC)

OUTLINE FOR MLA MEETINGS – ON (PDF)

MLA Meetings – Report Back Form – ON (DOC)

 

NEW BRUNSWICK – KUVAN ADVOCACY RESOURCES

 

CANPKU TAKES ACTION IN NEW BRUNSWICK (PDF)

DRAFT CONSTITUENT LETTER TO MLA – NB (DOC)

DRAFT MLA LETTER TO MINISTER – NB (DOC)

DRAFT RESIDENT LETTER TO MINISTER OF HEALTH – NB (DOC)

OUTLINE FOR MLA MEETINGS – NB (PDF)

MLA Meetings – Report Back Form – NB (DOC)

 

NEWFOUNDLAND & LABRADOR – KUVAN ADVOCACY RESOURCES

 

CANPKU TAKES ACTION IN NFLD (PDF)

DRAFT CONSTITUENT LETTER TO MLA – NFLD (DOC)

DRAFT MLA LETTER TO MINISTER – NFLD (DOC)

DRAFT RESIDENT LETTER TO MINISTER OF HEALTH – NFLD (DOC)

OUTLINE FOR MLA MEETINGS – NFLD (PDF)

MLA Meetings – Report Back Form – NFLD (DOC)

 

NOVA SCOTIA – KUVAN ADVOCACY RESOURCES

 

 

CANPKU TAKES ACTION IN NOVA SCOTIA (PDF)

DRAFT CONSTITUENT LETTER TO MLA – NS (DOC)

DRAFT MLA LETTER TO MINISTER – NS (DOC)

DRAFT RESIDENT LETTER TO MINISTER OF HEALTH – NS (DOC)

OUTLINE FOR MLA MEETINGS – NS (PDF)

MLA Meetings – Report Back Form – NS (DOC)

 

NUNAVUT – KUVAN ADVOCACY RESOURCES

 

CANPKU TAKES ACTION IN NUNAVUT (PDF)

DRAFT CONSTITUENT LETTER TO MLA – NU (DOC)

DRAFT MLA LETTER TO MINISTER – NU (DOC)

DRAFT RESIDENT LETTER TO MINISTER OF HEALTH – NU (DOC)

OUTLINE FOR MLA MEETINGS – NU (PDF)

MLA Meetings – Report Back Form – NU (DOC)

 

NORTHWEST TERRITORIES – KUVAN ADVOCACY RESOURCES

 

CANPKU TAKES ACTION IN NORTHWEST TERRITORIES (PDF)

DRAFT CONSTITUENT LETTER TO MLA – NWT (DOC)

DRAFT MLA LETTER TO MINISTER – NWT (DOC)

DRAFT RESIDENT LETTER TO MINISTER OF HEALTH – NWT (DOC)

OUTLINE FOR MLA MEETINGS – NWT (PDF)

MLA Meetings – Report Back Form – NWT (DOC)

 

PRINCE EDWARD ISLAND – KUVAN ADVOCACY RESOURCES

 

WIN: as of 2014, PEI now funds the low protein foods and more formula options needed by patients with PKU and other diet-managed Inborn Errors of Metabolism.  ADVOCACY WORKS!

 

CANPKU TAKES ACTION IN PEI (PDF)

DRAFT CONSTITUENT LETTER TO MLA – PEI (DOC)

DRAFT MLA LETTER TO MINISTER – PEI (DOC)

DRAFT RESIDENT LETTER TO MINISTER OF HEALTH – PEI (DOC)

OUTLINE FOR MLA MEETINGS – PEI (PDF)

MLA Meetings – Report Back Form – PEI (DOC)

 

QUEBEC – KUVAN ADVOCACY RESOURCES

 

CANPKU TAKES ACTION IN QUEBEC (PDF)

DRAFT CONSTITUENT LETTER TO MLA – QC (DOC)

DRAFT MLA LETTER TO MINISTER – QC (DOC)

DRAFT RESIDENT LETTER TO MINISTER OF HEALTH – QC (DOC)

OUTLINE FOR MLA MEETINGS – QC (PDF)

MLA Meetings – Report Back Form – QC (DOC)

 

SASKATCHEWAN – KUVAN ADVOCACY RESOURCES

 

WIN: as of 2012, Saskatchewan now funds the low protein foods needed by patients with PKU and other diet-managed Inborn Errors of Metabolism.  ADVOCACY WORKS!

 

CANPKU TAKES ACTION IN SASKATCHEWAN (PDF)

DRAFT CONSTITUENT LETTER TO MLA – SK (DOC)

DRAFT MLA LETTER TO MINISTER – SK (DOC)

DRAFT RESIDENT LETTER TO MINISTER OF HEALTH – SK (DOC)

OUTLINE FOR MLA MEETINGS – SK (PDF)

MLA Meetings – Report Back Form – SK (DOC)

 

YUKON – KUVAN ADVOCACY RESOURCES

 

CANPKU TAKES ACTION IN YUKON (PDF)

DRAFT CONSTITUENT LETTER TO MLA – YUKON (DOC)

DRAFT MLA LETTER TO MINISTER – YUKON (DOC)

DRAFT RESIDENT LETTER TO MINISTER OF HEALTH – YUKON (DOC)

OUTLINE FOR MLA MEETINGS – YUKON (PDF)

MLA Meetings – Report Back Form – YUKON (DOC)

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