Log in

Stay Tuned. This page is still under construction.

Restez à l'écoute. Cette page est en cours de construction.


CanPKU believes that creating awareness around Argininosuccinic Acid Lyase Deficiency (ASA) and other rare diseases helps patientsBecause Knowledge Leads to Better Health.

When people are aware of a condition, they are more likely to be understanding and supportive.  This might be as simple as ensuring that there are appropriate food choices at the next party your child attends, or it might mean that a politician will fight on your behalf for coverage of treatments.

According to Newborn Screening Ontario the instances of babies being born with ASA is 1 in 70,000. For more information see here 

Downloadable Resources for Individuals with ASA

General Information and Links

NORD - Rare Disease overview of ASA

Formula Based Information



School Aged

2022 - Cambrooke Back to School Guide for IEMs (English) Page 1 Page 2


Return to Therapy (care/diet) and Diet for Life


Region or Province Based

2021 © Copyright CanPKU.ORG


260 Adelaide Street East, #180
Toronto, ON, M5A 1N1, Canada
Toll Free: 1-877-226-7581

Powered by Wild Apricot Membership Software