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ONLINE EDUCATION AND EVENTS

CanPKU looks to bring you online education and events from ourselves as well as our sponsors and affiliates. If we think it may be of interest to you based on a disorder you may live with or know someone who lives with, we will post it here! Check out the calendar of events below to register!

From time to time we will also post other types of seminars that may be of interest, but are not directly linked to PKU and other Allied Disorders. You may find these on our Facebook Page.

IN PERSON EDUCATION AND EVENTS

Where possible, Can PKU also holds one day regional  events which include education, socialization and more! We bring in guest speakers, serve a snack or meal, and invite members of the community to gather and learn from each other. Check out a couple Youtube videos where some of our attendees discuss why they like to attend these events. (Sorry, we know both videos start out with the same dad speaking, but the next two clips on each video are different people)


CanPKU has been fortunate to have been able to hold an annual camp in two different locations so far. In 2019 we ran both locations in the same year! From that year we made a video showcasing some of the events at camp. Please see the clip below for the video. (Offered with English or French Captions.

In 2020 Coronavirus cancelled our plans. We are looking forward to the potential of being able to host in 2021 and are planning accordingly! Check out the events listing below to register!

Francais

Don't let funds get in the way of attending our events. If you need help, please reach out!

Upcoming events

Upcoming events

    • 2021-05-10
    • (EDT)
    • 2021-05-16
    • (EDT)
    • Virtual

    Let's celebrate staying together while we are apart.

    We were unable to host our traditional in person events again this year - but we miss you! We also want to provide you with an event that brings us all together.

    This post is meant as a "Save the Date"  

    Registration will need to be completed for EACH EVENT that you would like to attend (as listed in the calendar.)

    In order to see the calander and register please visit

    www.canpku.org/Staying-Together


    We will host a number of events during this week from group chats to educational pieces. You can sign in to one or all. CanPKU Members will have unlimited access included in their membership. Those who are not members or do not wish to sign up for a membership - will be able to sign up for a "Webinar Pass" for this week. It will allow unlimited members access and the ability to register for all or any events.



     

    • 2021-05-16
    • 11:00 AM (EDT)
    • Virtual
    Register

    Time: 11am Eastern (10am Central time/9am Mountain Time/8am Pacific time/12pm Atlantic time/1230pm NL time)

    Calling all adults with PKU. Let's chat. Want to talk about adult concerns? No talk of childrens' or teens concerns. This is all about YOU! Open cafe style discussions.

    REMINDERS:

    TIME ZONE IS SET FOR EASTERN. Please adjust accordingly.

    In order to register you must have EITHER a current MEMBERSHIP or a Complimentary WEBINAR PASS. Both are available on our Membership Page.

    The registration form has LOTS of questions in it. Name and email are mandatory. The rest are optional but will provide more content for your profile if you wish.

    This webinar is being offered in ENGLISH.


    • 2021-05-16
    • 1:00 PM (EDT)
    • Virtual
    Register

    Heure: 13 h 00 HNE (12 h 00 heure centrale / 11 h 00 heure des Rocheuses / 10 h 00 heure du Pacifique / 14 h 00 heure de l'Atlantique / 14 h 30  heure de Terre-Neuve)

    Les patients atteints de phénylcétonurie (ou d’autres déficiences enzymiques traitables) peuvent demander le CIPH et la plupart de ceux suivis en clinique y seront admissibles. Cela découle d’une nouvelle interprétation de la Loi de l'impôt sur le revenu par l’Agence du revenu du Canada (ARC), confirmée par plusieurs décisions de la Cour canadienne de l'impôt.

    PCU Canada s’est engagée à travailler avec chaque patient ou aidant naturel qui présente une demande de CIPH pour veiller à ce que leurs feuilles de calcul soient exactes et complètes.

    Bien que l’approbation des demandes de CIPH pour des personnes phénylcétonuriques soit devenue courante, il arrive parfois qu’une demande soit initialement refusée par un examinateur de première ligne de l’ARC qui s’arrête uniquement à la notion de « diète ». PCU Canada peut aider les patients et les aidants naturels à s’orienter dans le processus pour obtenir une réponse favorable. Nous n’avons jamais perdu en appel! Les refus initiaux deviennent aussi rares que la PCU elle-même!


    • 2021-05-16
    • 3:00 PM (EDT)
    • Virtual
    Register

    Time: 11am Eastern (10am Central time/9am Mountain Time/8am Pacific time/12pm Atlantic time/1230pm NL time)

    Calling all Teens. This open chat is for you! What worries you? What struggles do you have? What do you celebrate? Let's talk to other teens ... just like you!

    REMINDERS:

    TIME ZONE IS SET FOR EASTERN. Please adjust accordingly.

    In order to register you must have EITHER a current MEMBERSHIP or a Complimentary WEBINAR PASS. Both are available on our Membership Page.

    The registration form has LOTS of questions in it. Name and email are mandatory. The rest are optional but will provide more content for your profile if you wish.

    This webinar is being offered in ENGLISH.


    • 2021-09-24
    • 6:00 PM (EDT)
    • 2021-09-26
    • 2:00 PM (EDT)
    • 1010 Birchview Road, Douro-Dummer ON K0L 2H0
    • 100
    Register
    Camp MagniPHEque!

    Join us for a weekend of fun, knowledge, relaxation, and campfires! The third annual PKU Camp is the traditional camp experience – complete with bonfires, camp activities and nature – with a PKU twist. With food catered to PKU and non-PKU diets, expert speakers talking about the latest developments surrounding PKU, cooking demos and vendor displays, it’s a weekend not to be missed! Bring the whole family along, take a break from food preparation and relax for the weekend.  All this, and sleeping in cabins, too! (If you are camping in Ontario, and prefer a hotel bed over a bunk bed, we have an option for you too! Check out Glamping!)

    Registration is limited and filled on a first-come, first-served basis.

    Questions? Please contact us at camp@canpku.org.


    Camp Waiver Form Undated.pdf


POSTPONED EVENTS

Regional Events -

Thanks to a little virus called Covid 19 our regional events have been postponed for 2021-2022.

Education. Networking. Samples. These are a few good reasons to attend a PKU event. We promise you, it is worth the time and travel costs required. CanPKU hosts events all across Canada each year as part of our annual Event Series, and we are also happy to share information about events hosted by others (please scroll to the bottom of this page). Why?  Because Knowledge Leads to Better Health. 

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CONTACT US

260 Adelaide Street East, #180
Toronto, ON, M5A 1N1, Canada
Toll Free: 1-877-226-7581
Email: info@canpku.org


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