Stay Tuned. This page is still under construction.

Restez à l'écoute. Cette page est en cours de construction.

Awareness

CanPKU believes that creating awareness around Maple Syrup Urinary Disease (MSUD) and other rare diseases helps patients…Because Knowledge Leads to Better Health.

When people are aware of a condition, they are more likely to be understanding and supportive.  This might be as simple as ensuring that there are appropriate food choices at the next party your child attends, or it might mean that a politician will fight on your behalf for coverage of treatments.

Downloadable Resources for Individuals with MSUD

General Information

Nutricia - MSUD patient can find resources on their YouTube channel: Nutricia Metabolics Canada - YouTube

Formula Based Information


RxModality has solutions for MSUD. Unfortunately, at this time, none of these products have coverage at the moment in Canada.  Should you have any questions on these products email Petr Formanek  or want to help us advocate for their coverage please contact us at info@canpku.org MetaXJump10  ZeroVilMinis  ZeroVil KJA  ZeroSystems


Nutricia has a Maxamum recipe book available in English and French. You can download it right from here.

Maximum Recipe


Nutricia propose un livre de recettes Maxamum disponible en anglais et en français. Vous pouvez le télécharger directement à partir d'ici.

Recettes Maxamum

Infancy

2021 Nutricia - Temple to MSUD ENGLISH  Video livret temple - FRANCAIS  vidéo

Toddler

Nutricia - Youtube Videos - Nutricia Metabolics Canada- How to read a nutrition facts table - YouTube

Nutricia - Youtube Videos - Nutricia Metabolics Canada - How to calculate the amount of protein in your portion size - YouTube

Nutricia - Youtube Videos - Nutricia Metabolics Canada - How to plan your weekly low protein meals - YouTube

School Aged

Teens

Maternal MSUD

Return to Therapy (care/diet) and Diet for Life

Awareness

Region or Province Based

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CONTACT US

260 Adelaide Street East, #180
Toronto, ON, M5A 1N1, Canada
Toll Free: 1-877-226-7581
Email: info@canpku.org


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