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Awareness

CanPKU believes that creating awareness around Urea Cycle Disorder and other rare diseases helps patientsBecause Knowledge Leads to Better Health.

When people are aware of a condition, they are more likely to be understanding and supportive.  This might be as simple as ensuring that there are appropriate food choices at the next party your child attends, or it might mean that a politician will fight on your behalf for coverage of treatments.


Downloadable Resources for Individuals with UCD

General Information and Links

NORD - Rare Disease overview of ASA


Formula Based Information


Infancy

Toddler

School Aged

2022 - Cambrooke Back to School Guide for IEMs (English) Page 1 Page 2


Teens

Return to Therapy (care/diet) and Diet for Life

Awareness

Region or Province Based

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CONTACT US

260 Adelaide Street East, #180
Toronto, ON, M5A 1N1, Canada
Toll Free: 1-877-226-7581
Email: info@canpku.org


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