Parents Cafe - Support Group

  • 2022-08-20
  • 4:00 PM - 5:00 PM
  • Virtual


  • No parents, children, teens. This meet is ONLY for Adults 18+ who have PKU or MSUD and are looking to support or get support for PKU or MSUD.

** If you are receiving this and are not a parent of someone with PKU or Allied Disorder , please reply and let us know your connection to our Rare Family. We can then edit your profile so you get the correct emails.**

Topic: Parents Support Cafe (Group) 

Time: August 20th 2022 04:00 PM Eastern Time (US and Canada)

Join our Zoom Meeting to meet other like minded parents of those with PKU, MSUD and other Allied Disorders. Learn and support each other through the ages and stages of Rare. 

Children, Teens and Adults with allied disorders are asked to NOT register/attend this event - unless of course you are also a parent of  a rare child.

This event is being offered in English.

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