** If you are receiving this and are not an adult or teen with a rare metabolic disorder (PKU, MSUD, etc), please reply and let us know your connection to rare. We can then edit your profile so you get the correct emails.**
Topic: Adult/Teen Support Cafe (Group)
** THIS ZOOM WILL HAVE A SPECIAL GUEST INVITED; REGISTERED NURSE CAROLINE BROST FROM SASKATCHEWAN. She will be joining with us to chat calories. We will also record this zoom with the permission of all invited **
Join our Zoom Meeting to meet other like minded Adults and Teens who have a rare metabolic disorder.
*** PLEASE NOTE *** This will be our last Zoom event - we will move to Google Meets in 2023!
Children with allied disorders and parents of children are asked to NOT register/attend this event.
This event is being offered in English.