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Innovation
Tools, tracking, apps and emerging approaches that may support care and quality of life across our community.
Tools & Apps
We review digital tools that support day-to-day dietary management for inborn errors of metabolism (IEMs).
These tools generally fall into three categories: specialized single-condition trackers, multi-IEM platforms
with richer clinical context, and clinician-grade nutrient-analysis systems.
More detailed app-by-app information is available on our Digital Tools & Apps page.
More detailed app-by-app information is available on our Digital Tools & Apps page.
Important note for patients and families:
Food amino-acid values and phenylalanine-per-gram values can come from different sources, including nutrition labels,
public databases, estimates or laboratory analysis.
Some tools use estimates where data is missing, so logs should be treated as decision-support tools and reviewed
with a metabolic clinic team where appropriate.
flok publicly explains that it uses USDA and MetabolicPro data where possible and industry-standard estimates where
information is missing, with some foods also laboratory tested through its own program.
[2]
Privacy and data residency in Canada:
Many apps do not clearly state where cloud data is stored, whether in Canada, the United States, Europe or elsewhere.
Because diet logs and laboratory values can contain sensitive health information, Canadian users should consider
asking where data is stored and what safeguards are in place before sharing exports with schools, caregivers or clinics.
Canada's privacy regulator notes that PIPEDA does not prohibit cross-border transfers for processing, but organizations
remain accountable for protecting personal information through appropriate safeguards and contractual controls.
[1]
What is Next
Coming soon.
We are working on practical guidance to help families choose and use digital tools, including what may be helpful
to track for different disorders, tips for preparing information for clinic visits, and questions to ask app developers
about privacy and data residency.