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Documents - Living Life by Roles You Play
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9 Documents
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HCU - Homocystinuria
MSUD - Maple Syrup Urine Disorder
PKU - Phenylketonuria
TYR - Tyrosinemia Type
UCD - Urea Cycle Disorder
Document Sub-Topics
Clinicans
(8)
Parents & Caregiver
(65)
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(15)
Teacher & Educator
(30)
Understanding HCU
(Video)
Author(s):
Child Life on Call, Melanie Colter
Rating:
No Rating
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Youtube
CAPTURING THE FULL PICTURE: A JOINT POLICY PAPER ON UNMET MEDICAL NEED IN PHENYLKETONURIA (PKU)
(Video)
Author(s):
ESPKU, PTC Therapeutics
Rating:
No Rating
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Description:
Importance of Unmet Medical Need in Healthcare Unmet Medical Need (UMN) is essential for identifying treatment gaps and prioritizing healthcare resources. It drives innovation and enhances patient-centered care, particularly in diseases like PKU, which may be perceived as having low unmet needs despite significant patient challenges.
PDF
PKU Nutritional Milestones
(Video)
Author(s):
Ajinomoto Cambrooke
Rating:
No Rating
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PDF - English
Liste de produits nutritionnels thérapeutiques couverts par le programme alimentaire québécois pour le traitement de maladies métaboliques
(Video)
Author(s):
héréditaires - Juin 2024
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No Rating
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Description:
Liste de produits nutritionnels thérapeutiques couverts par le programme alimentaire québécois pour le traitement de maladies métaboliques
Link
Classroom News
(Video)
Author(s):
Ajinomoto Cambrooke
Rating:
No Rating
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Description:
Starting School.
PDF - English
Dietary information for the treatment of PHENYLKETONURIA
(Video)
Author(s):
NSPKU
Rating:
No Rating
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PDF
HCU Food List
(Video)
Author(s):
Abbott Laboratories
Rating:
No Rating
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Description:
This guide for Homocystinuria (HCU) and methionine (MET)- restricted meal plans identifies the amount and type of food permitted each day and can make checking and balancing meals much easier. Careful eating helps control blood levels of MET, with positive effects on health.
PDF
HCY Facts
(Video)
Author(s):
Texas Dept of State Health Services
Rating:
No Rating
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PDF
Executive Function Situational Awareness Observation Tool
(Video)
Author(s):
Ward, Sarah; Jacobsen, Kristen
Rating:
No Rating
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Link
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Link
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A Clinical Model for Developing Executive Function Skills
