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Documents - Advocacy
Results:
28 Documents
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HCU - Homocystinuria
MSUD - Maple Syrup Urine Disorder
PKU - Phenylketonuria
TYR - Tyrosinemia Type
UCD - Urea Cycle Disorder
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Document Sub-Topics
Access to Medication
(11)
Becoming an Advocate
(0)
Health Canada - Foods for Special Dietary Purposes
(3)
More Organic Ingredients in Formulas
(0)
E3 Advocacy Digital Magazine
(Links)
Author(s):
Heal Canada
Rating:
No Rating
Read Reviews
Description:
Partner Newsletter
Magazine
Understanding HCU
(Links)
Author(s):
Child Life on Call, Melanie Colter
Rating:
No Rating
Read Reviews
Youtube
Advocacy Training
(Links)
Author(s):
CanPKU+, Empower Advocacy
Rating:
No Rating
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Description:
Two YouTube videos
2 - Your Voice Matters
|
1 - Treatment Approved, Now What?
Letters
(Links)
Author(s):
Rating:
No Rating
Read Reviews
Description:
none
PDF
Made In Canada Framework for Orphan Drugs
(Links)
Author(s):
Rating:
No Rating
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Description:
none
PDF
Kuvan Fact Sheet
(Links)
Author(s):
CanPKU+
Rating:
No Rating
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Description:
none
PDF
Ontario Public Drug Programs - Kuvan Rejection letter
(Links)
Author(s):
Rating:
No Rating
Read Reviews
Description:
none
PDF
Comparison of Coverage for Metabolic Foods and Formula across Canada
(Links)
Author(s):
CanPKU+, Barbara Marriage, Kendra Tapscott
Rating:
No Rating
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XLS
BMC position points: Protecting patients in Canada from tariff and other trade measures
(Links)
Author(s):
Best Medicine Coalition
Rating:
No Rating
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PDF
BMC - Drug Shortage Overview - Health Canada
(Links)
Author(s):
Best Medicine Coalition
Rating:
No Rating
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PDF
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