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Documents - 01. Advocacy
Results:  16 Documents
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Canada’s national pharmacare plan – boon or bane? (English)
Author(s): Rawson, Nigel; Adams, John Rating: No Rating   Read Reviews  
Description: National pharmacare, as proposed by the federal government, will not improve patient access to innovative medicines without major changes to current gatekeeping practices. Without deeper reforms, it could make drug access worse for patients. Canadians used to be proud of their “national medicare,” but health care across the country is now in crisis (Angus Reid Institute 2023). There’s a significant shortage of doctors, nurses, and hospital beds, several million Canadians have no family physician (Duong and Vogel 2023), emergency rooms are overrun with people who have nowhere else to turn for medical treatment (Kirkey 2024; Zafar 2024), and wait times to see a specialist (assuming an appropriate one is accessible in your area) and for surgery are far too long (Moir and Barua 2023) such that patients can die before seeing a health care provider.
  Link
The situation of Palynziq in Quebec: On air with "Lagacé le matin" (English)
Author(s): Landry, Marika; PCU Blog, Lagacé le matin Rating: No Rating   Read Reviews  
  PDF  |  Link - French
Revenue Canada - DTC - Mental Function (English)
Author(s): Canadian Revenue Agency Rating: No Rating   Read Reviews  
  JPG
Pan Canadian Guidance for NBS (English)
Author(s): Canada Drug Agency Rating: No Rating   Read Reviews  
Description: Pan Canadian Guidance for Newborn screening: Building the Foundations for Early Detection and Diagnosis of Conditions
  PDF
Letter to the Disability Tax Fairness Alliance Executive Committee (English)
Author(s): Hon. Marie-Claude Bibeau, P.C., M.P. Minister of National Revenue Rating: No Rating   Read Reviews  
  PDF
Health Canada and Foods for Special Dietary Purposes (English)
Author(s):  Rating: No Rating   Read Reviews  
  Word  |  Word  |  PDF  |  PDF
HCU Newborn Screening - This little dot (English)
Author(s): CanPKU+; Chute, Tanya Rating: No Rating   Read Reviews  
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BC Access to timely Medications (English)
Author(s): Best Medicine Coalition Rating: No Rating   Read Reviews  
Description: CanPKU+ is a member of the Best Medicine Coalition (BMC)
  Word  |  PDF  |  PDF  |  PDF  |  jpg
HCU - Advocating for test coverage for HCU in Northern Ontario Communities (English)
Author(s): Mozdzen, Samantha Rating: No Rating   Read Reviews  
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Mini Bios for Each of our Rare Disorders (English)
Author(s): CanPKU+; Colter, Melanie; Mozdzen, Samantha; Needleman,Susan; Chute,Tanya; Garstin, Michaela Rating: No Rating   Read Reviews  
Description: A document that briefly explains HCU, MSUD, PKU and UCDs
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