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Documents - 18. Links
Results:
10 Documents
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bilingue/bilingual
English
Francais
Keyword...
HCU - Homocystinuria
MSUD - Maple Syrup Urine Disorder
PKU - Phenylketonuria
TYR - Tyrosinemia Type
UCD - Urea Cycle Disorder
Document Sub-Topics
Apps
(1)
Helpful Sites
(6)
Other Patient Organizations
(5)
Courageous Parents Network
(English)
Author(s):
Rating:
No Rating
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Link
Sibling Support. Org
(English)
Author(s):
Rating:
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Description:
https://siblingsupport.org/
Link
Siblings Canada
(English)
Author(s):
Siblings Canada
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Description:
https://canadiancaregiving.org/siblingscanada/
Link
Fichier canadien sur les éléments nutritifs (FCÉN) - Recherche par aliment
(English)
Author(s):
Gouvernement du Canada
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Description:
Vous pouvez effectuer une recherche d'aliments avec ou sans accents, en lettres majuscules ou minuscules et avec des mots clés complets ou partiels. Les mots clés seront recherchés peu importe leur ordre, partout dans la description. Un espace laissé entre les mots sera interprété comme l'opérateur « et ». Vous pouvez aussi utiliser les opérateur « ou » et « non » pour préciser la recherche. Les mots clés sont cherchés en tant que mots complets ou mots partiels, ce qui veut dire qu'une recherche au singulier trouvera les mots au pluriel. Exemples : a) pomme trouvera aussi pommes, pommette, b) pomme crue (ou pomme et crue) trouvera aussi tous les aliments qui contiennent ces deux mots dont pomme de terre crue, c) pomme ou crue trouvera les aliments qui contiennent l'un ou l'autre de ces mots ainsi que les deux mots présents dans le nom. Pomme non crue trouvera tous les aliments qui contiennent le mot pomme sauf ceux renfermant le mot crue.
Link
Your Nutritional Monitoring for metabolic diseases - Tyrophed
(English)
Author(s):
https://tyrophed.com/#
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Description:
This application is an initiative of Mrs. Lydia St-Gelais, mother of little Édouard suffering from tyrosinemia. The application was named in honor of little Édouard (ED) and aims to help parents of children or patients with metabolic diseases like Édouard. This application is specially designed to track tyrosinemia, phenylketonuria, maple syrup urine disease and urea cycle disease. This tool will facilitate the daily monitoring of nutritional intake and leave you more time for what really matters!
Link
Canadian Organization for Rare Disease (CORD)
(English)
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Description:
CORD is Canada's national network for organizations representing all those with rare disorders.
Link
Connaissances sur les maladies rares et les médicaments orphelins
(English)
Author(s):
OrphaNet
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No Rating
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Description:
Aucune maladie n'est trop rare pour ne pas mériter attention
Link
Knowledge on rare diseases and orphan drugs
(English)
Author(s):
OrphaNet
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No Rating
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Description:
Rare diseases are rare, but rare disease patients are numerous
Link
Canadian Nutrient File (CNF) - Search by food
(English)
Author(s):
Government of Canada
Rating:
No Rating
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Description:
The food search is case- and accent-insensitive, and keywords used can represent complete or partial words. Keywords will be matched in any order against any part of food descriptions. If more than one keyword is used, they may be separated by a space or any of the operators 'and', 'or', or 'not'. A space is equivalent to the operator 'and'. In all cases, keywords are searched both as whole words and partial words, which means that a singular keyword will also find the corresponding plural forms, and prefixed forms. Examples: a) 'fish' will also find 'Crayfish', b) 'apple raw' (or 'apple and raw') will find all the foods having both keywords anywhere in their description, but also: 'Pineapple, raw', c) 'apple or raw' will find any food having either or both keywords anywhere in the description, while 'apple not raw' will find all instances of 'apple' except where 'raw' is also present anywhere in the description.
Link
HCU Network America
(English)
Author(s):
HCU Network America
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No Rating
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Description:
Support Website
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