Policies & Disclaimers

Privacy Policy

The Canadian PKU and Allied Disorders Inc. (CanPKU+) respects your privacy.

Please note that CanPKU+ maintains member/participant/registration information for its own use and does not rent, sell or otherwise provide any identifying information to outsiders.

We never sell, trade, or loan your information to any other organization.

We will use your information only for follow-up contacts (such as our newsletters), statistical purposes, and to process and recognize your donations and membership.

We disclose your information only to our own employees, volunteers, and agents and only to accomplish the purposes listed above.

CanPKU+ Policies:

As we do from time to time, we are reviewing our policies and will update this section to those that apply to our membership. This will include a way to report any activities of concern. In the meantime, please utilize the feedback form if you have anything that we should know about. The mail will be received by the Vice President and COO.

Website Editor and Content Policy

Information to be posted on the CanPKU+ website is submitted by our members, board members, professionals, or companies related to PKU and other metabolic disorders. The information is reviewed by the website team (CEO, VP, and Chair) and/or our medical advisor, and if approved, it is published.

Website Disclaimer:

All materials posted on this site are owned by Canadian PKU and Allied Disorders (CanPKU+) or other individuals or entities as listed. Any reproduction, retransmission, or republication of all or part of any document found on this site is expressly prohibited unless CanPKU+ or the copyright owner of the material has granted prior written consent.

Although this website features links to other sites, CanPKU+ takes no responsibility for the content or information contained on those sites, as we do not exercise editorial or other control over these sites.

This website provides information and services in furtherance of our mission. We make no representations about the suitability or accuracy of the information on this site for any purpose.

If you see any objectionable, inaccurate, or improperly functioning content or features on this site, please contact website@canpku.org as soon as possible.

Medical Disclaimer:

Any information on the Canadian PKU and Allied Disorders Inc. website is intended for informational and educational purposes only and should not be taken as medical, nursing, or professional health-care advice. This information should not replace a visit, call, consultation, or advice from your physician or healthcare provider.

You should not use the information on this website to diagnose or treat PKU or any other disorder without first consulting with your physician or healthcare provider. Any referral to physicians is provided as a courtesy only.

Source of Funding:

This website is managed by volunteers, and no funding from any source supports the content. Our website currently does not host any form of advertisement.