Digital Tools for IEMs: App-by-App Guides

Best for: People with PKU who want daily tracking plus blood-level graphing plus caregiver sharing, including a Canadian food database option. [49]

App basics (identity and availability)

Features (high level)

Tracks phenylalanine, protein, exchanges, formulas, calories, and blood levels; supports exports and multi-device sharing. [7] [50]

Canada note

The iOS listing highlights a Canadian food database option (English and French), which may help Canadian families reduce custom entries. [53]

Privacy and security (plain language)

Public sources do not clearly specify data hosting region; Canadians who need Canada-only hosting should ask the developer. [56]

For more information:

• EasyPKU on the Apple App Store [155]
• EasyPKU on Google Play [9]
• EasyPKU privacy policy [56]

Best for: PKU families who want a Phe-values web database plus tracking and export, especially while waiting for flok migration. [71]

Basics

Privacy note

The privacy policy lists third parties including analytics and payment processors; storage region is not clearly stated in reviewed sources. [16]

For more information:

• HowMuchPhe.org [157]
• How Much Phe privacy policy [16]

Best for: PKU users who want a low-cost tracker that can work offline and supports exports. [116]

Data hosting region is not publicly specified in reviewed sources; Canadians should be cautious with identifiers and confirm secure sharing methods. [121]

For more information:

• AccuGo for PKU on the Apple App Store [6]
• AccuGo privacy policy [121]

These tools were identified in our source scan but are not yet summarized in the same depth as the entries above. We list them here so families can recognize names they may see online, and so we can prioritize which ones to review next.

Android apps

• Diet Assistant (Google Play) Open listing [148]
  Why it may matter: could be used as a general diet helper, but we have not confirmed PKU-specific functionality, data safety disclosures, or hosting details yet.
• PKU Diet (Google Play) Open listing [149]
  Why it may matter: name suggests PKU focus, but we have not yet verified whether it tracks Phe in mg, supports recipes, exports, or clinician-friendly reporting.
• PKU Bite (Google Play) Open listing [151]
  Why it may matter: could be a lightweight PKU-specific tool. We have not yet confirmed its food database source, privacy policy, or data residency.

iOS and web

• Cycle Vita PKU (iOS app listing) Open listing [150]
  Why it may matter: may be a manufacturer-supported PKU tool. We have not yet summarized features, privacy labels, or whether it is available and supported for Canadian users.
• PKU Pal (website) Open site [152]
  Why it may matter: may provide PKU-oriented tracking or education resources. We have not yet verified what data is collected, where it is stored, or which countries are supported.

Best for: A lightweight leucine-focused logger; note MSUD management often requires Ile and Val too. [93]

Storage region is not specified in reviewed sources; the app notes Firestore and AdMob in its policy. [21]

For more information:

• LeuciPocket on Google Play [19]
• LeuciPocket on the Apple App Store [22]

Best for: Research participants and clinical teams; not a consumer storefront app today. [39]

Public pages reviewed do not specify hosting region or vendors; rely on research consent documents for participants. [39]

Best for: A methionine-focused tracker with blood-test logging and optional profile sharing. [24]

Policy references Firestore and AdMob; storage region is not specified in reviewed sources. [25]

Best for: A low-cost iOS tracker that can work offline and supports exports, with HCU modes (protein or methionine). [37]

Best for: A single app designed for multiple inherited disorders of protein metabolism with reporting and caregiver coordination. [11]

flok states Canadian availability is delayed due to PIPEDA-related data storage requirements; Canadians should watch for official availability and ask about Canadian data hosting when it launches. [12]

For more information:

• flok Health on Google Play [156]
• flok: Canada availability (help center) [12]

Best for: Broader low-protein support (meal planning, reminders, wellbeing tracking) with exports, with access tied to MDDA membership. [28]

Best for: Clinician-grade nutrient analysis with complete amino acid data coverage, typically used by metabolic dietitians and clinics. [29]

Best for: A multi-condition portal with metabolic clinic collaboration roots; hosting and modern security posture are not clearly stated in reviewed public excerpts. [42]

PIPEDA (federal, commercial apps): PIPEDA does not prohibit transferring personal information to another jurisdiction for processing, but organizations remain accountable for protection and safeguards appropriate to sensitivity. [144] [145]

PHIPA (Ontario, health sector custodians): Ontario guidance and statute govern how personal health information is handled by health information custodians and their agents, including expectations around safeguards and access. [146] [147]

Practical best practices: minimize identifying data where possible (use initials), turn off unnecessary permissions (location and contacts) when not needed, prefer tools with clear export and deletion options, and use secure clinic sharing methods rather than regular email when possible. [1]

More detail: Canadian privacy guidance sources