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CanPKU believes that creating awareness around Maple Syrup Urinary Disease (MSUD) and other rare diseases helps patients…Because Knowledge Leads to Better Health.
When people are aware of a condition, they are more likely to be understanding and supportive. This might be as simple as ensuring that there are appropriate food choices at the next party your child attends, or it might mean that a politician will fight on your behalf for coverage of treatments.
Introducing our MSUD Chair Person - Susan
Downloadable Resources for Individuals with MSUD
USA - MSUD Family Support Group - Website https://msud-support.org/
Nutricia - MSUD patient can find resources on their YouTube channel: Nutricia Metabolics Canada - YouTube
(Video) Maple Syrup Urine Disease | Pathogenesis, Signs & Symptoms, Subtypes, Diagnosis and Treatment
Formula Based Information
RxModality has solutions for MSUD. Unfortunately, at this time, none of these products have coverage at the moment in Canada. Should you have any questions on these products email Petr Formanek or want to help us advocate for their coverage please contact us at firstname.lastname@example.org MetaXJump10 ZeroVilMinis ZeroVil KJA ZeroSystems
Nutricia - Youtube Videos - Nutricia Metabolics Canada- How to read a nutrition facts table - YouTube
Nutricia - Youtube Videos - Nutricia Metabolics Canada - How to calculate the amount of protein in your portion size - YouTube
Nutricia - Youtube Videos - Nutricia Metabolics Canada - How to plan your weekly low protein meals - YouTube
Return to Therapy (care/diet) and Diet for Life
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