We thank you in advance for your continued patience while we tweek a few things and get used to all its wonderful functions. If you should happen to come across a "Broken link" please let us know by sending a quick email to info@canpku.org. If you are available to help with sourcing some new articles or information we welcome your assistance and you can reach us at the same email. Your feedback is welcome! COVID 19, PKU and the VaccinationRead Dr. Cary O. Harding's statement HERE We thank Dr. Cary O. Harding and NPKUA for sharing this document with us. For those wishing to continue their education with Covid 19 and Rare. We suggest this resource tool shared by BadGut.org which is another advocacy site available for those with other disesases. https://badgut.org/covid-19/ |
Can we accept donations? ABSOLUTELY. CanPKU relies on donations to help us achieve our goals for the community. Please click the image to the right to make a donation today! Thank you in advance for consider CanPKU as a worthy organization to receive your donation. Please note: As we are not a charity, we are unable to issue tax receipts for any donation made. |
Canadian PKU and Allied Disorders Inc. is a non-profit association of volunteers, first organized in the Spring of 2008 based in Toronto, Ontario. We are dedicated to providing accurate news, information and support to families and professionals dealing with phenylketonuria (PKU) and similar, rare, inherited metabolic disorders. Our mission is to improve the lives of people with PKU and allied disorders and the lives of their families.
Click the image below to answer a few questions to get you the perfect gift!
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We did an email blast and asked our community to send us their "faces" so we could create and update a flyer about CanPKU. It is important to us to use REAL faces of our community whenever we can. Check out the results to the right! |
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We wish to thank all of those who make CanPKU work! There are many volunteers working to help this community. We thank all of them for their time and efforts! |
Trial information is available on our Trials tab But we wanted to draw special attention to this trial currently accepting Canadians IN CANADA |
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Updating your profile is important to our new platform! Click HERE or the image to the left for more information on how to complete this! |
CanPKU's Upcoming events
| Top News Articles That May Interest You
PTC Therapeutic : Helping those with PKU Synlogic: Announces progress towards 2022. 2022 - Food Regime for Phenylketonuria: Presenting Complications and Possible Solutions Synlogic Appoints Molly Harper as Chief Business OfficerFDA Slaps a Hold on BioMarin's PKU Gene TherapyNICE approves Kuvan treatment for pregnant women - Zenopa Synlogic Announces Initiation of Phase 1 Study of SYNB1934, a Next-Generation Strain for the ...
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Privacy Statement:
Please note that CanPKU maintains member/participant/registration information for its own use and does not rent, sell or otherwise provide any identifying information to outsiders.
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Click on Community Stories title above to be taken to some PKU Community Members who have shared their story. Want to share your story? Send it to newseditor@canpku.org |