Join us!! On International Rare Day CanPKU and Necpad (New England Connection for PKU) come together to provide you a unique celebration. Bring along your formula to sip and let's celebrate YOU!
On Rare Disease Day (Feb 28th, 2022) at 6:30 PM Eastern Time CanPKU and NECPAD are teaming up to host a virtual meet up/Zoom so we can discuss our formula successes and concerns as well as have a bit of fun and entertainment.
All are invited from parents with little ones, to children, youth, teens and adults with PKU.
Grab your milk or another beverage of your choice and let’s support each other while discussing our formula successes and concerns!
Zoom will start at 6:30 pm with all in our community and break off into groups based on age or interests. ALL VERY WELCOME!!!
Thanks to NECPAD and CanPKU there are eight $25 Amazon gift certificates to be won - all you have to do to be eligible is to sign up in advance and attend the event!
PLEASE NOTE: If you register via this tool, the registration page looks incredibly long. ONLY your name and email are required. Other fields are useful for continued contact, but not necessary to attend this event. CanPKU does not sell or share our contact lists. However, if you are from the USA and register via this tool, whatever information you share will be given to NECPAD to ensure the best continued communication is coming from your own country.
If you prefer to sign up for the event by email please email to tanya.chute@canpku.org or necpad.org@gmail.com with subject title "Rare Disease Day Zoom" Don't forget to also let us know what Rare Allied Disorder you have and the age of the rare individual for the breakout groups.
