Methylmalonic Acidemia & Propionic Acidemia (MMA/PA)
Stay Tuned. This page is still under construction.
Restez à l'écoute. Cette page est en cours de construction.
Although we wish we had the resources to help everyone, we are limited. We include any disorder that includes a low protein diet under our umbrella to ensure everyone has access to a patient support group. There is no Canadian Group for Organic Acidemia at this time. We are open to assisting this group. In the meantime, we encourage you to check out https://oaanews.org/ for more assistance.
CanPKU+ believes that creating awareness around Methylmalonic Acidemia & Propionic Acidemia (MMA/PA) and other rare diseases helps patients…Because Knowledge Leads to Better Health.
When people are aware of a condition, they are more likely to be understanding and supportive. This might be as simple as ensuring that there are appropriate food choices at the next party your child attends, or it might mean that a politician will fight on your behalf for coverage of treatments.
Downloadable Resources for Individuals with MMA/PA
Don't forget to link back to GENERAL DOWNLOADS which have over all downloads for you.
You can also check out the resources under the Research and Patient Support Drop down menu.
General Information and Links
Region or Province Based
2021 © Copyright CanPKU.ORG