ISOVALERIC ACIDEMIA (IVA)

Although we wish we had the resources to help everyone, we are limited. We include any disorder that includes a low protein diet under our umbrella to ensure everyone has access to a patient support group. There is a Canadian Group for Organic Acidemia. We encourage you to check out https://oaanews.org/ for more assistance.


Awareness

CanPKU believes that creating awareness around Isovaleric Acidemia (IVA) and other rare diseases helps patients…Because Knowledge Leads to Better Health.

When people are aware of a condition, they are more likely to be understanding and supportive.  This might be as simple as ensuring that there are appropriate food choices at the next party your child attends, or it might mean that a politician will fight on your behalf for coverage of treatments.

According to Newborn Screening Ontario the instance of a baby being born with IVA is 1 in 100,000 to 200,000. For more information see here

Downloadable Resources for Individuals with IVA


Formula Based Information


Infancy

Toddler

School Aged

2022 - Cambrooke Back to School Guide for IEMs (English) Page 1 Page 2


Teens

Return to Therapy (care/diet) and Diet for Life

Awareness

Region or Province Based

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CONTACT US

260 Adelaide Street East, #180
Toronto, ON, M5A 1N1, Canada
Toll Free: 1-877-226-7581
Email: info@canpku.org


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