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The MedAccessBC coalition of patient groups (common & rare diseases) which CanPKU+ belongs to has planned a public awareness & advocacy campaign in first part of 2024. 

BC Medication Coverage Report 2024 - This is a very informative tool that can be used to present to MLAs, other parties in advance of the election, media outlets etc. 

See the Full Press Release here. https://badgut.org/bc-public-medication-coverage/

Your call to action:

BC residents are being asked to email/write/visit their current MLAs.  

How to find out who your MLS is.

Please head to this website https://www.leg.bc.ca/learn-about-us/members and enter your postal code where it request it. This tool will let you know who your MLA is and how to reach them.

Email, Call or Write your MLA to request a meeting with them.

You can use our template email here. Do include your personal story and why timely access to new medical treatments is vital to you and/or your family.

Example Letter with some content. 

We need to Educate, Motivate and Inspire all parties in BC in advance of the elections in the Fall of 2024.

In the greatest interest of the patients of BC we need to be Omni-Partisan and look to work with all political parties in advance of the elections in 2024. 


https://badgut.org/wp-content/uploads/BC-Medication-Coverage-Report-2024-FINAL.pdf

In order to keep up to dates on matters of this Advocacy Target please connect with the following social media channels

Gastrointestional Society badgut.ca

** The message forum is an optional gadget which can be added here. Please let me know if you would like it here or removed. You can "subscribe" to the forum by clicking the option below which will alert you when someone adds content. I would suggest this option for John and Melanie to not miss items if we keep this gadget. I think it may be a good way to help encourage people to participate.

I have added a topic to give you an idea.

 

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2023-12-20 2:19 PM CanPKU (Administrator)

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