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Awareness

CanPKU believes that creating awareness around Tyrosinemia Type-1 and other rare diseases helps patients…Because Knowledge Leads to Better Health.

When people are aware of a condition, they are more likely to be understanding and supportive.  This might be as simple as ensuring that there are appropriate food choices at the next party your child attends, or it might mean that a politician will fight on your behalf for coverage of treatments.

According to Newborn Screening Ontario the instance of a baby being born with Tyrosinemia is type 1 is 1 in 100,000. Find out more here

Downloadable Resources for Individuals with TYR-1

General Information and Links

NORD - Rare Disease Overview of TYR-1


Formula Based Information


RxModality has solutions for Tyr-1. Unfortunately, at this time, none of these products have coverage at the moment in Canada.  Should you have any questions on these products email Petr Formanek  or want to help us advocate for their coverage please contact us at info@canpku.org   ZeroSystems


Infancy

2021 Nutricia - Temple to TYR1 - English

2021 Nutricia - livret Temple to HT-1 Francais

Toddler

School Aged

2022 - Cambrooke Back to School Guide for IEMs (English) Page 1 Page 2

Teens

Return to Therapy (care/diet) and Diet for Life

Awareness

Region or Province Based

Apps to help you manage your TYR-1

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CONTACT US

260 Adelaide Street East, #180
Toronto, ON, M5A 1N1, Canada
Toll Free: 1-877-226-7581
Email: info@canpku.org


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