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CanPKU+ believes that creating awareness around Tyrosinemia Type-1 and other rare diseases helps patients…Because Knowledge Leads to Better Health.
When people are aware of a condition, they are more likely to be understanding and supportive. This might be as simple as ensuring that there are appropriate food choices at the next party your child attends, or it might mean that a politician will fight on your behalf for coverage of treatments.
Gérard Tremblay, père de Jeannick Tremblay, préside un regroupement de parents d’enfants tyrosinémiques. Il s’est lui aussi réjoui de voir que Québec investit pour venir en aide aux familles.
According to Newborn Screening Ontario the instance of a baby being born with Tyrosinemia is type 1 is 1 in 100,000. Find out more here
Downloadable Resources for Individuals with TYR-1
Don't forget to link back to GENERAL DOWNLOADS which have over all downloads for you.
You can also check out the resources under the Research and Patient Support Drop down menu.
General Information and Links
NORD - Rare Disease Overview of TYR-1
2021 - Nutricia _ Fact Sheet for TYR
Formula Based Information
RxModality has solutions for Tyr-1. Unfortunately, at this time, none of these products have coverage at the moment in Canada. Should you have any questions on these products email Petr Formanek or want to help us advocate for their coverage please contact us at email@example.com ZeroSystems
2023 - maladies rares supplements annonce quebec
3 simple ways to mix in TYR Lophlex GMP MIX-IN.pdf
Region or Province Based
Apps to help you manage your TYR-1
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