Fundraising

Welcome to the CanPKU Fundraisers webpage!

CanPKU could not do what it does without the support of our community hosting events when and where they can in support of our mission. We truly appreciate and value your efforts! Below are some ideas and suggestions. At the bottom of the page you will find our calendar that will let you know what fundraising events are currently going on. Please keep in mind, for those attending your fundraiser, that due to our Not for Profit status, we are currently unable to issue tax receipts for donations.


PINS 4 PKU

First introduced in 2018; PINS4PKU helps raise money to provide scholarships for families to attend Camp MagniPHEque. Families and friends from across the Nation (with and without PKU) join together and go bowling! Bowlers raise pledges and come out for a day of fun!

After just 2 years Pins4PKU had raised over $20,000! It has sent many families from coast to coast to both the Saskatchewan and Ontario camps. 

Are you interested in hosting an event? It's just as easy as planning a day out bowling for the family. In fact, if you need extra help - we are happy to provide it! We can call the bowling center and arrange the booking if you prefer. Please email to info@canpku.org to arrange this assistance.

Sure, some people have gone WAY OVER BOARD and arranged silent auctions, bake sales etc to push the fundraiser even farther - but it is what ever you are comfortable with. We appreciate every dollar.

Book Launch for Danielle Mohr's "Drift"

Lucas Mohr's was born in 2014 and has PKU. His aunt is Danielle Mohr.  His mom has reached out as her sister in law, Danielle, has dedicated her book called "Drift" to Lucas. In addition to this sweet dedication, they have decided in honour of Lucas - they will donate a portion of the sales of the book to CanPKU. This is also mentioned on the dedication page. We are very honoured to be considered for this donation. The book will officially launch on September 14th in Spruce Grove Alberta.  The website for the book is is https://www.daniellemohr.com/drift/ 

You do not need to have a kindle to read this. The kindle app is available free. All you need is an Amazon account to access the kindle app.

By purchasing through this link a portion of the sale may come from Amazon to CanPKU.



Some of these forms may help in your planning. These have also been used for walk a thons and paint nights. The options are limitless!

Funds can be deposited directly to our account at the bank, mailed by cheque to our treasurer - As of 2021 we can also accept etransfers!!

Email tanya.chute@canpku.org to find out more information on etransfers! (Please do so before sending funds)

Past Fundraisers


PKU Poker Run

In September 2014 Chris and Angel Krauskopf welcome their daughter Delilah into the world. At five days old Delilah was diagnosed with PKU.

In Celebration of Delilah’s first birthday her parents and grandmother Deb Brown; Finance Coordinator withHamilton Health Sciences created the PKU FUND.  The PKU FUND is specifically to used for patient amenities such as; group celebrations, cooking demonstrations and resource materials.

In 2016 the passion continued with Delilah’s grandfather Gene Edwards. A member  of the IRONHAWKS motorcycle club, collectively the club organized a ride to celebrate PKU patients, families and friends. The first run that July donated $2000.00 exclusively to the PKU FUND, McMaster Children’s Hospital.

In 2017 this loving family expanded their reach and included CanPKU in their fundraising efforts. PKU patients, families and friends stand by the roadside waiting in anticipation for the riders to pass by. What a site to see and experience. CanPKU president John Adams attended the second year with information materials. A donation of $1000.00 was given to Camp MagniPHEque and a second gift to PKU FUND was donated.

"At the beginning of the ride as the bikers cruise by, they greet us all the with smiles, waves and honking horns as they continued their journey. That very moment is one that will never be forgotten and we look forward to next year’s event. "

The tradition continued in 2018 with both locations being recipients of the valued donations. It is an exciting annual tradition. Unfortunately, COVID 19 cooled this event for a bit, but we are excited to see if it returns. It is a wonderful event; not only for the funds they raise, but the sense of community they continue to grow!


2016 Peter Wardell’s Boston Marathon

Determined to fulfill his lifelong goal of running a marathon and helping raise funds for two different disorders near and dear to his heart, CanPKU was thrilled in May 2016 to receive a donation from Peter Wardell.  Peter raised a whopping $3,858 for CanPKU, and had this to say:

I’m so happy to have been able to donate $3,858 CAD for CanPKU. CanPKU has been so amazing in educating, advocating and making us feel a welcome member of the PKU community ever since we found out our 4 year old daughter Luka had PKU a week after she was born. 

As a 5 year old, I watched my father train for a marathon and knew I wanted to do the same one day.  I also wanted to raise awareness for PKU (Phenylketonuria) which my daughter Luka has, and MS which impacts my sister Melissa. I qualified for the 2016 Boston marathon at my maiden marathon attempt in Edmonton in August 2015 with a time of 3:07:06. My BHAG (Big Hairy Audacious Goal) was to try and cross the line in under 3 hours in the Boston Marathon in April 2016.

After 4 months of training 5 days a week, and up to 95km/week I crossed the line in 3 hours, 2 minutes and 36 seconds. It was shy of my sub 3 hour goal but conditions considered (it was way hotter than anticipated) I was really happy with the result. Of 31,000 runners, I ranked 6791 (based upon my qualifying time) and crossed the line in 1777th position. It was such an awesome feeling of accomplishment and very humbling to see the support pour in for the PKU/MS fundraising campaign. I owe a lot to my very patient and support wife, and two girls; Luka (4) and Avideh (2).

Thank you for all the contributions for CanPKU, and we look forward to continuing to be an engaged family in the PKU community.


Paint Night

The fundraiser was held in Sparwood and included light refreshments. Tickets were $45 each, with $25 of that going to CanPKU!

Rosie P. chose the image to be painted (see above).

This was an amazingly unique fundraiser that allowed Rosie's mom Nicole to enjoy the evening as someone else ran the event for her once the registration was completed. We think they did a great job and applaude them for thinking outside the box on this fundraiser! Thanks for the donation!!


PKU Walkathon Kamloops

May is PKU Awareness Month. PKU Adult Amanda C, along with Brianne who is a friend and a PKU Mom planned these amazing walk a thons on a number of years. There were joined by approximately 7 families that we know of living in kamloops that have someone they love affected by PKU. They walked Riverside Park and offered a large Silent Auction to help raise money for CanPKU. THANKS LADIES for your donation. We appreciated the annual efforts made for this event. We know they are hard to pull off!

Artetvino Fundraiser for CanPKU!

This event offered an inspiring and stress-free, guided painting session, and support CanPKU at the same time!  Instructions will be given by a Professional Art Therapist and all materials will be provided.  Attend this fun event and you will leave with your very own masterpiece!

This event was held in Quebec.  The admission fee is $35.00 per person.  Artetvino will donate $10.00 of each charge collected to The Canadian PKU & Allied Disorders Inc.  Space was limited to 40 participants. Thank you to Artetvino for this fundraiser!

2014 Avery’s Ride for PKU.

PKU uncle Kevin Dube cycled across Canada in 71 days through all weather and terrains in the summer of 2014 to raise awareness in honour of his niece, Avery. He was determined to make a difference for Avery and all those living with PKU. The route includes every provincial capital and the 16 cities with a PKU-treating clinic. Ultimately, this project generated dozens of media opportunities and raised over $50,000 for CanPKU.  In 2015, CanPKU presented Kevin Dube with our Hero of PKU Award.

Check out his appearace on Breakfast Television

 Read the Avery's Ride Press Release - Jan 31, 2014 for full details. 

Other Fundraisers

Over the years we have seen many different fundraisers, from Penny Drives, Pampered Chef Parties, a HairCutathon to Polo Matches!  Be creative, and be sure to let us know if you are hosting something with proceeds going to CanPKU so that we can post the information above.  

Get your school, sports teams, co-workers and classmates involved with this easy fundraiser to spread awareness and support our education, events, and advocacy efforts!


Upcoming Fundraising Events

Upcoming events Fundraising

  • No upcoming events - Want to plan one?

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Toronto, ON, M5A 1N1, Canada
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Email: info@canpku.org


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