Canadian PKU and Allied Disorders - Infancy

Infancy

We want to help you at each step of the way.

We understand some of the resources are specific to disorders but many can overlap.

We also have peer support if you just need to talk to someone. Please get in touch.

General Screens for all Infants - regardless of having rare.

Downloadable Resources:

2022 - Cambrookes Infant and Toddler Development Milestones

2022 - Étapes importantes du développement des nourrissons et des tout-petits à Cambrookes P1 P2

2021 - Nutricia - Involving Babysitters Gardien(ne)s

2023 - Nutricia - Grandparents Grands-parents

2021 - Nutricia - Formula Formule pour la prise en charge nutritionnelle

Newborn Screening Backgrounder / Le dépistage néonatal et la PCU – Document d’information

MyBaby & PKU by Laura Demchuk Sloan, PhD - A resource developed for child care providers.

Feeding your baby from 6 months to 1 year Vitalite NOURRIR VOTRE BÉBÉ de l’âge de 6 mois à 1 an

2012-Blood-Dot-Collection-Instructions.pdf Helpsheet for collecting your blood spot.

Website Links:

2023 - https://www.medicaldevice-network.com/news/cdc-test-screen-hcu-newborns/

YouTube Video Links:

Your own Protein Restricted Rare:

Please check under your own Protein Restricted Rare tab to find a TEMPLE book on your own rare as well as a video of the book.

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